Carly Cares is funding transportation for 12 children with Progeria and their families to Ashford, Conn. to attend a three-day experience at the Hole in the Wall Gang Camp this summer. Carly Kudzia, a Whitehouse resident diagnosed with Progeria, will travel with her family to the camp on Aug. 27 to lend support, share experiences, and unwind and have some fun with the other families.
Progeria is a rare disorder affecting one in 8 million births. There are only 18 known cases in the US and 104 globally.
“The other families living with Progeria have become extended family to us. We share trials and triumphs. It is always comforting to spend time with others who truly understand what Carly experiences every day,” said Heather Kudzia, Carly Cares president and mother to the foundation’s 5-year-old namesake.
The Hole in the Wall Gang Camp was founded in 1988 by Paul Newman to give every child, no matter their illness, a fun-filled experience full of comradery, compassion, and acceptance, free of charge. The Hole in the Wall Gang Camp celebrates friendship and the spirit of childhood and provides a unique healing experience to kids in need and their families. Camp activities include horseback riding, archery, sports and recreation, swimming, boating, fishing, theater arts, music, tennis, miniature golf, arts and crafts, adventure and high-ropes, and woodworking.
Carly Cares is a 501(c)(3) non-profit organization whose mission is to support children and families suffering from rare diseases including Progeria, and the medical researchers who fight these diseases. Carly Cares, and its army of volunteers known as “Team Carly Q”, holds several fundraising events each year.
Its largest fundraiser, the 5th Annual Carly’s Party—for the Cure!, is on Friday, Sept. 18 at the Pinnacle in Maumee. For information about purchasing tickets or sponsoring Carly’s Party, visit www.teamCarlyQ.com.